An Emotional Pathway to Learning
Combating Autism: 6 Tips for Successful Dietary Intervention
Fitting Fitness into the ASD Household
Neurofeedback: A Powerful Tool in the Treatment of Autism
Can Diet Changes Help Recover a Child with Autism?
Your Questions About Planning For The Future
Choosing a Guardian is Critical
Jacksonville Family Healing Autism Through Better Documentation And Collaboration
Back To School Lunches On The GF/CF Diet
Vital Stim Therapy for Swallowing Disorders
Wellness Through Chiropractic Care
Heaven Mills, High Quality GF/CF, Allergy Free
Bakery on Main, Gluten and Casein Free
Highlights from Past Editions
Also visit
www.AutismHealthandWellness.BlogSpot.com
for a full list of archived articles.
An Emotional Pathway to Learning
Dr.
Janet Flowers and her team have over a decade of work exploring the emotional
pathway to long term memory for exceptional children. The neural routes underlying the formation of
memories about emotional experiences have been traced in the past decade. This work, although new, is quite a rewarding
area of research because it begins to explain the relationship between emotion
and memory. In simplest terms, emotional
experiences can be linked to long term and working memory. Thus, by providing
an emotionally arousing experience (i.e. interaction with water, a marine
mammal or bird) is paired with teaching a specific communication/language
skill, the child is potentially storing skills learned not only through
traditional pathways (hypocampal), but also through the emotional center of the
brain (amygdala).
Dr.
Flowers and her team use an intense emotional stimuli to engage an emotional
memory pathway in the brain (amygdala).
This pathway is quite fast and bypasses the "screening" that
occurs to an "experience" before it is normally placed into long term
memory. In practice, a specific communication skill chosen for a
child is identified to be part of an activity.
Dr. Flowers and her team teach these individualized skills for each
child while providing an emotionally arousing experience (i.e. interaction with
a marine mammal, water, birds etc.). The
kind of emotional stimulus is selected based on each individual child's needs,
level of functioning and sensory capacity.
The
specific skill chosen for therapy is usually one in which the child has had
particular difficultly acquiring in his/her traditional ongoing weekly or daily
therapies. As an example, a non-verbal
three year old boy with a severe heart condition was referred to Dr. Flowers by
his cardiac physician. The purpose of
therapy was to gain a consistent yes/no response from "Davey". Upon arrival to Dr. Flowers Institute, Davey
did not have a yes/no
response of any kind. The doctor was
concerned that during an upcoming surgery (pre- and post care), it was
imperative for Davey to be able to consistently respond and answer yes and no
questions ("Does it hurt here? here?"). During his two weeks of therapy, by initially placing Davey on a voice output
rocking switch plate, Davey acquired a consistent yes and no response. This skill was then transfered to a head
shake and nod which Davey took back home so that heart surgery could be
completed with communication skills in place that he had not possessed prior to
therapy. Davey also said his first word
during the second week of therapy: "guck" for duck while pointing to
the new baby ducklings presented by Dr. Flowers.
Another
example involves a 5 year old child with Down Syndrome. Communicatively, "Rosey" was using
single word signs and single words verbally to request actions and
objects. Parents and therapists back
home had been unable to get Rosey to combine 2 words or signs. By providing an emotionally intense
interaction with a marine mammal, Dr. Flowers was able to elicit two-word
combinations both verbally and nonverbally to request actions from the marine
mammal ("feed Ivan" to request that she get to feed; "more
Ivan" to request more interaction; "more in" to request getting
in the water). Through this 2 weeks of
intensive intervention therapy, parents and therapists were able to then elicit
two words combinations when Rosey returned home. When Rosey returned one year later, she had
maintained and expanded her ability to combine 2 or more words to communicate
her wants and needs with the support of her long term therapist.
As
each child above returned to therapy once per year, stimuli intensity was, and
should be expanded. Just as the
intensity of the emotional experience can fade with frequency and experience;
this technique has limits within the context of communication/language therapy
for children. Dr. Flowers technique
should be implemented as a complement to existing therapies, not as a
replacement for daily/weekly therapies.
This technique is intended to provide a bridge to overcome a hurdle in
communication/language skills. The long
term communication/language therapist should be the professional, along with
the parents, in determining the appropriate intervention use of this effective instructional
tool as part of an overall long term plan.
Does
this technique work for all children?
No, for individual reasons as diverse as the children and situations
presented. This puts Dr. Flowers and her
team in an information gathering mode prior to ever scheduling a child for
therapy at the Institute. Only about 70%
of the children presented are accepted as therapy candidates, based on the
Institute's review of each child's IEP, pertinent medical information, as well
as school reports and records. This
extensive review of each child's goals and objectives assures that children be
accepted only if Dr. Flowers and her team deem a child as a good candidate for
achieving results utilizing their unique method of therapy.
There
is much more work to be accomplished in this new, rewarding and promising area
of an emotional pathway to long term memory.
For those at the Dr. Janet Flowers Institute, the results have been an
"intense emotional experience" for the team that continues to drive
their efforts.
Dr. Janet Flowers has
a Bachelors and Masters of Science from the Department of Speech and
Language/Communication Disorders of Florida State University and a Doctorate in
Education from the University of West Florida.
Janet has a decade of public school experience as a speech pathologist
and a decade of experience as a researcher in private practice. Dr. Flowers is Kaufman certified, Beckman
certified and a member of the American Speech Hearing Language
Association. Websites can be viewed at
drjanetflowersinstitute.com, doctordolphin.com; her Facebook page is newly up
and can be found under Dr. Janet Flowers Institute, and she can be reached at
bbflowers1@cox.net.
Combating Autism: 6 Tips for Successful
Dietary Intervention
By Nadine G. Gilder
Peanut
butter and jelly, cookies and milk, hot dogs and hamburgers, autism and diet:
Some things just go together!
As
the parent of a child on the Autistic Spectrum, it is inevitable that at some
point you will be made aware of the idea that Autism is related to diet and
that diet can play a powerful role in your child’s progress.
Picky
eater, diarrhea, constipation, reflux and eczema…sound familiar? Add to that limited language, inappropriate
social behaviors, sensory integration issues and to top it all off, the
inability to either fall asleep or stay asleep. These are just some of the
issues parents report when describing their children. And as any parent will
tell you, the sleep issue becomes a shared one. It all sounds pretty bleak and
it would be if research didn’t show us time again that dietary intervention can
greatly reduce and in many cases eliminate these issues and so many more.
Parent’s testimonials confirm this. Yet, it still amazes me that so many
parents are reluctant to try this non-invasive approach to help their children.
Let me reassure you that the fears you have about making dietary changes are
disproportionate to what you are dealing with right now.
Through
my counseling service, Autism Educational Services (www.AutismEducationalService.net),
I have worked for the past 13 years teaching parents about the importance of
and how to implement dietary intervention for their autistic children and the
results have been astounding. It’s never easy to embrace change, and this is
especially true for children whose entire survival appears to be rooted in the
safety of routines.
As
the parent of a just-turned twenty-year old autistic son who has been on a
gluten-, casein- and soy-free diet for the past fourteen years, I’d like to
pass along some practical, yet valuable, advice and tips for achieving success
through dietary intervention.
Finally,
diet is not your child’s whole life, just a part of it. Done correctly, it can
greatly improve your child’s overall health and the quality of your entire
families life. Most importantly, it has the power to provide you with many
opportunities to marvel at the joy your child will begin to experience as
he/she begins to feel better.
Nadine G. Gilder, CHC
is the founder of Autism Educational Services, a counseling service that
teaches parents how to implement dietary intervention to help their children.
She has successfully worked with hundreds of parents across the country, is a
recognized Defeat Autism Now! Nutritional Counselor and a Certified Health
Coach. Go to www.AutismEducationalServices.net to register for a free initial
consultation and/or to receive free, healthy and tasty GFCFSF recipes.
Fitting Fitness into the ASD Household
By Eric Chessen
We
all know that fitness and an active lifestyle are the key components of
preventative health care. Knowing and doing, however, can be a Grand Canyon
leap apart. Fitness is obviously beneficial for the young autism population;
there are stacks of great published research to back that statement up. The
reality is that fitness is often misunderstood and can also be far too
exclusive or limiting. Fitness programs for young people with autism need to
consider several important factors to be successful both in the short- and
long-term.
Consideration
1: Sports Do Not = Fitness.
I
have dedicated many hours of my speaking and writing time to debunking this
myth. Without getting too in-depth, we have far to narrow a focus on sports as
the epitome of fitness and activity for young populations. Children and young
people with autism often have difficulty with team sports because they do not
have the prerequisite skills to participate, and the social interaction can be
anxiety-provoking. The movement in sports is also very specific. Throwing a
baseball or kicking a soccer ball does not generalize or carry over to life skills
or other physical abilities. Sports are not the top of the pyramid; they are a
branch on a tree. The roots and trunk of that tree are general physical skills.
Consideration
2: Play is Crucial
When
team sports took over as the “be-all, end-all” or physical activity, we lost
the most important aspect of physical fitness: Play. Many young people with autism do not actively engage in
imaginative or exploratory play, an essential area of optimal development. In
my Autism Fitness programs, I approach the issue this way:
Structured
teaching for chaotic use. Play is chaos. It is random, unique, and consistently
evolving. It is also important to teach the skills needed for vigorous physical
activities where they don not already exist. For example, jumping is a skill
often used in play. If one of my athletes with autism does not yet have the
physical ability to jump, he/she cannot use
the skill in random, play-based situations. By teaching the skill of jumping in
a structured, specific sequence, my athlete is able to first acquire the
ability to jump and then use that ability in various settings (generalization).
If
fitness is not fun, we would not want to do it. With children and teens on the
spectrum, it is extremely important to ensure that physical fitness activities
are appropriate, reinforcing, and provide variety.
Consideration
3: The Five Fundamental Movement
Patterns
How
can parents, educators, therapists, and others involved with the young autism
population create a fun, successful, and appropriate fitness program? I use the
Five Fundamental Movement Patterns as a starting point:
-
Pushing: Movement away from
the body (medicine ball throws, pushups)
-
Pulling: Movement towards the
body (climbing variations, exercise band pulls)
-
Bending/Squatting: Lowering the knees towards the floor and returning to a
standing position (Squatting variations, picking up weighted objects off the
floor, jumping, bear walks, frog hops)
-
Rotation: Movement around the
body (Twisting ball throws, pivoting steps or jumps)
-
Locomotion: Movement from point A
to Point B (Short runs, hopping, animal walks)
Of
course, the written word is not the best modality for demonstrating exercise in
detail, and there are plenty of videos on Autismfitness.com to spur your
fitness creativity.
Consideration
4: Fitness should be an everyday event,
but not a stressful one.
Too
much too soon equals overload and aversion. Below are the “silver bullet
points” for introducing and maintaining a fun, successful exercise program in
the home:
-
Begin
with basic activities from the Five Foundational Movements. Progress or
regress/simplify the exercises based on the current ability of the
individual(s).
-
Pair
exercise with activities or situations that are already enjoyable or
reinforcing. For example, five jumping jacks and then listen to a favorite song
-
Always
use behavior-specific praise. Not just “Good job, Brian!” Focus on what the
athlete succeeded at: “Awesome job doing an overhead throw, Brian!”
-
Keep
verbal directions very simple. Too much explaining is confusing.
-
Add
“Family Exercise Time” into the home. The more opportunities for physical
fitness, the faster it becomes part of a lifestyle.
Eric
Chessen, M.S., YCS, Founder of Autism Fitness consults and provides workshops
and lectures around the country, and recently contributed a chapter on fitness
to a new book, Autism Tomorrow, which the authors are giving away for
free at www.AutismTomorrow.com For more information about Eric and his
programs, visit www.Autismfitness.com.
Did
you know there’s a way to change the brain wave patterns associated with Autism
Spectrum Disorders, bringing relief from a variety of troubling
symptoms?
We frequently have
parents of the ASD kids treated at our center tell us they have seen more
significant and remarkable changes in their kids after brain training than with
any other treatment they’ve tried. And changes can often be astonishingly
quick, though it takes continued practice to create long standing results.
Perhaps this is best demonstrated by sharing a real life story of an autistic boy visiting our center for help.
When he arrived, this 2 ½ year old was in the middle of an emotional
meltdown. His uncontrollable crying could be heard across the building.
Mom informed our clinician that her son had meltdowns several times a day and
she couldn’t go out in public with him. She noted that he was involved in
head banging, had delayed speech, hated to be touched, and would not make eye
contact even with his father or her. He engaged in self-stimming, did not
interact with other kids and despite occupational therapy and a gluten/casein
free diet--he continued to decline.
So
how does it work? In order to understand how neurofeedback can help
autism, let's first talk about the autistic brain. In the autistic brain,
connections between different parts of the brain aren’t being made correctly
and this causes "miscommunication". This miscommunication
creates delays in learning and development; sensitivity to sounds, lights, and
touch; lack of eye contact or inability to correctly interpret social cues;
repetitive movements or fixations. The connection problems vary from
individual to individual, causing a spectrum effect. With neurofeedback
we train the brain to regulate itself and to establish better
connections. This then translates into positive changes in behavior.
How do you regulate and re-train brain connections?
By gently placing EEG electrodes on the head, we are able to read the
electrical activity of different parts of the brain. By hearing beeps,
the brain is rewarded for making better connections, and beeps are withheld
when better connections aren’t made. The participant doesn’t have to be
aware of the training, as illustrated in the case of the 2 1/2 year old client
mentioned above. His brain tuned into the rhythm of the beeping even
while watching his favorite "Dora the Explorer" video. Learning
and re-training occurs whether we ask it to or not. Just like when
children learn to tell when mom is happy or upset--no one teaches them this,
they learn this by themselves.
Whether it’s ADHD, developmental delays, learning
problems, obsessive thinking, or some other symptom associated with ASD, brain
training can help. When our brain function improves, we function better
on many levels. As you can imagine, this not only improves the quality of
life of the ASD individual, but also positively impacts the experience of the
entire family.
If you would like to learn more about how neurofeedback can help, visit our website at www.centerforbrain.com or call 561-744-7616.
Can Diet Changes Help Recover a Child
with Autism?
By Julie Matthews, Certified Nutrition Consultant
Parents of children
with autism are learning that food choices can help their sons and daughters
become healthier and reach their full potential. In addition to traditional
behavioral therapy and other pharmaceutical treatments, pediatricians, researchers,
and nutritionists increasingly recommend that parents implement autism diets,
autism-specific nutrition, and specialized supplementation.
Even
television's respected Dr. Oz recently said, "Some of the most promising
treatments for autism come from changing the foods that the child is
eating."
The
term “recovery” is best explained by organizations such as Autism Research
Institute (founded 1967) and Generation Rescue.
The word conveys the healing possibility for these children--to reach
their potential of health and happiness. Actress Jenny McCarthy's analogy aptly
explains, while you can’t be cured of getting hit by a bus, you can recover.
Children have, and are, recovering from autism.
Pursuing
recovery is not about "curing" autism; it’s about believing in and
taking action toward improved health and healing.
Doctors
now recognize that the bodies of children with autism are unique and require
very specific care, including special enzymes for digestion, medical treatment
for yeast infections and other common conditions found during testing,
attention to digestive issues, special dietary requirements (autism diets),
nutrient and fatty acid supplementation, behavioral therapy, and more.
When
I began researching nutrition intervention for autism 10 years ago, 1 in 166
children had the disorder; in the early 1980s it was 1 in 10,000. Current government (CDC) statistics indicate
that it’s now 1 in 91. General prognoses
under traditional approaches are considered grim and offer little promise of
improvement for these children, as many believe that autism is a life-long
condition. But parents are not waiting
for answers from a mainstream medical system that holds an antiquated
perspective of their child’s condition.
The
outdated model sees autism as a “mysterious” psychiatric disorder that begins
and ends in the brain—and reports that little can be done to impact its
effects. Through the breakthrough work
of the Autism Research Institute a more appropriate “whole body disorder” (the
brain is affected by the biochemistry generated in the body) perspective of
autism has emerged.
When
seen as a whole body disorder, parents and physicians are more likely to
identify the physical symptoms of autism that often get overlooked including
diarrhea, constipation, bloating and GI pain, inflammation, and frequent
infections. With this broader
comprehension it becomes apparent that there is a great deal that can be done
to address these challenges. Step one is
to take charge of diet.
When
parents correctly implement specific autism diets, improvements in
gastrointestinal problems (including diarrhea and constipation), language,
learning, focus, attention, eye contact, behavior, sleep difficulties, toilet
training, and skin rashes/eczema have been observed. Parents around the world are beginning to
share their stories of healing. Since every child is unique, improvements will
vary.
It’s
important to understand that these diets are customized food-focused strategies
of nutritional intervention for autism. Going from not considering the impact
of food intake (standard American diet) to giving specialized attention
(nutrition centered diet) is the key to promoting systemic healing through
autism diets. All autism diets involve the removal of problematic foods and
substances, and the addition of easier to digest nutrient dense foods.
Certain
food substances, such as gluten (wheat) and casein (milk) are known to be
problematic for many children with autism, and should be avoided – and other
foods rich in healing nutrients are beneficial when added to children’s
diets. Attention to these factors is
intended to help balance biochemistry, affect systemic healing, and provide
relief of autism symptoms.
For
many children with autism, nutrient deficiencies, chemicals in foods,
imbalanced biochemistry, and digestive problems can play a significant role in
their physical conditions. Their physiological and behavioral symptoms may stem
from, or be exacerbated by, impaired digestion and GI health. Altering food choices positively affects
these processes and helps improve symptoms.
There
are several diets that are used by parents, autism nutritionists and
pediatricians. These diets include the Gluten-Free Casein-Free (GFCF) Diet,
Specific Carbohydrate Diet (SCD), Gut and Psychology Syndrome (GAPS) Diet, Low
Oxalate Diet, Body Ecology Diet, Feingold Diet and Weston A. Price dietary
principles.
Parents
begin with simple steps: more fresh fruits, vegetables and grass-fed meats
whenever possible. They read labels for ingredients and clean out their
cupboards. They shop for organic foods in order to remove antibiotics,
hormones, pesticides and PCBs from the dinner table. They naturally avoid
pre-packaged, canned or frozen foods that contain preservative, additives, colors
and artificial ingredients. They immediately decrease the amount of sugar they
feed their children. The guidance of a qualified nutrition profession is always
recommended.
After
the initial clean up steps are completed, parents embark on the implementation
of an autism diet, which typically begins with removing gluten and casein—as
implemented in the GFCF diet. Gluten is the protein found in wheat, rye,
barley, commercial oats, kamut, and spelt. Casein is the protein found in
dairy. The GFCF diet has become popular for autism and the general population,
and there are many GFCF foods available in stores. Parents applying a GFCF diet cook from great
recipes they find online and in autism diet friendly cookbooks.
Autism
Research Institute (ARI) surveyed thousands of parents and found that 69% of
those applying the GFCF Diet saw improvement.
For the Specific Carbohydrate Diet, 71% noted improvement. In recent
autism diet research funded by Autism Speaks, 82% of parents reported “definite
improvement” in their child's skills. Respected pediatrician and author of “The
Autism Book,” Dr. Robert Sears says that 75% of his patients following the diet
see great improvement.
For
the parent of a child with autism, the food that they choose to serve their
children is vitally important to their healing. Autism diets are an important
first step all parents should consider as they are creating a program for the
improved health and well being of children.
Julie Matthews is an
internationally respected autism nutrition specialist and author of the
award-winning book, “Nourishing Hope for Autism” and the creator of “Cooking to
Heal: Autism Nutrition and Cooking Classes” (DVD). Julie provides diet and nutrition
intervention guidance backed by scientific research and applied clinical
experience. She presents at the leading
autism conferences in the US and abroad. Visit www.NourishingHope.com
A Toy
Tool to Teach Children How to Communicate and Express Feelings
By Christina Wallerstein, Playworks.net
Need new ways to work on communicating and
expressing feelings? Welcome to the
world of Onionhead...
Everyone has feelings. Some people have
learned to identify and acknowledge feelings and know what to do with what they
feel. These people have achieved psycho-social well-being. Even in
the grips of negative emotions, they know how to handle how they are
feeling. Other people allow their feelings to control their actions,
often making bad situations worse.
Delays in acquiring speech, lack of spoken language,
inability to make eye contact, and lack of interest in peer relationships
in children with autism spectrum disorders make recognizing,
understanding, and handling feelings a Herculean challenge. Unable to
read nonverbal and verbal ques from those around them, these children too often
respond inappropriately in social situations; “repeat performances”
leave parents and child frustrated, to say the least. Developing
even rudimentary social skills requires consistent, focused effort.
Success does not come easily.
So how can we help children learn to “name and
claim” their feelings and what to do with what they feel? One way is to
model the responses we’d like to see, to teach by example. That alone,
however, will not lead to success. We must also provide opportunities for
children to explore feelings and learn healthy ways of responding. Since
children with autism think in pictures, let’s begin there.
Hardly know how to begin? Onionhead
knows. Onionhead takes a light hearted approach to a
serious subject. Believing that we need never be ashamed of how we feel,
that every emotion is understandable, and that what counts is what we do with
our feelings, Onionhead provides a direct way to explore emotions
and reach a place of well-being rather than a place of wounds.
We at Playworks are delighted to introduce Onionhead
Children’s Edition A-Z Dictionary of 52 Emotions and their
Stories . Accompany Onionhead on “a journey
to emotional discovery.” In the dictionary Onionhead
shares his own funny, difficult, and meaningful experiences through 26 stories
comparing 26 light emotions with their opposite heavy ones. From
accepted/rejected to zestful/jealous, Onionhead helps us
identify feelings and teaches us how to turn heavy emotions into light ones.
Children relate to Onionhead.
Humorous--we’re talking here about a talking onion after
all--nonjudgmental, and wise, Onionhead becomes a buddy, sharing
what he’s learned in a way children readily understand.. Start
simple. Choose one pair of feelings, and begin there. Then add on.
Let’s consider Happy/Sad. Onionhead
describes Happy, a light feeling, as cheerful, joyful, pleased. Sad,
its opposite heavy feeling , as gloomy, sorrowful. Onionhead
demonstrates nonverbally through facial expressions and gestures--feelings as
pictures-- what happy and sad mean. Then he shares a difficult
experience, the death of his “fabulous dog named PiCaBoo.” Having
described his feelings of “becoming a permanent frowner,” with the help of his
mother he discovers that he can be Sad and miss PiCaBoo and
be Happy with a new friend, his new dog Yellow. Onionhead
concludes that “Feelings move and feelings change. They are not set in
stone - they rearrange. A happier tomorrow is a great belief to
swallow.”
Onionhead opens avenues for personal adult/child exploration of basic
feelings. Practice making faces and gestures that illustrate the emotions
you’ve chosen. Take pictures of family members, label the emotions, and
play a matching game, using either the dictionary or the portable deck of
feeling cards. Tell stories of personal experiences with the
emotions being explored.
Onionhead Children’s A-Z Deck of 52 Feeling
Cards offers 26 positive feelings cards and 26
opposite feelings cards and five games that explore creativity, communication,
and conflict resolution. Onionhead
believes in making friends with all our
feelings - even the stinky ones. Through
games children learn to “name and claim” their feelings, healthy ways of
communicating emotions, and problem solving skills.
One mother of three sons, including one
with PDD, uses the feelings cards as a border in her sons’ rooms, showing her
sons a wider range of feelings than happy and sad. Furthermore every
night each family member draws two cards at random and uses those as a
springboard for sharing something about the day. This ritual provides
consistent, focused re-enforcement
for emerging communication, emotional and social skill development and gives
the mother insight into her son’s feelings. Other parents report
success leaving the cards out for their children to explore at will.
Speech and language pathologists like the way Onionhead
builds pragmatic and syntactic language skills while developing
emotional intelligence. Onionhead expresses his
feelings verbally and non-verbally through his facial expressions and gestures,
just as we all do. Children with autism spectrum disorders need engaging
ways to learn to decipher these messages, and Onionhead provides
many.
What we do with what we feel makes all the
difference in our sense of well-being. Onionhead offers
this advice: peel it, deal with it, heal it. And to think an onion can teach us how.
http://www.playworks.net/teaching-learning.html
Your Questions About Planning For The
Future:
By
Karen Greenberg
Q - We recently attended a seminar you gave at our
daughter's school. We have 3 children, ages 14, 12 and 9. Our twelve-year-old has autism. We would
like to establish a special needs trust to provide for her future financial
needs. The problem is that our extended
family is small and dispersed throughout the United States. We are having some
trouble in the selection of future successor trustees. Our non-disabled
children are minors, and the only other relatives live in the Mid-West and West
coast. Can you please advise what available options we have in selecting
a trustee?
A - The selection of a trustee is one of the most
important decisions the parent of a disabled child must make. The trustee of a supplemental
needs trust will have the responsibility of prudently investing the assets in
the trust, and making responsible expenditures for the needs of the disabled
beneficiary, without jeopardizing public benefits.
Most
trust documents give the trustee flexibility in choosing appropriate
investments. In addition, the trustee's role is to use the income and/or some
of the principal of the trust for the needs of the beneficiary. In most cases, the guardian of the child will
request that the trustee pay for certain goods or services for the beneficiary. Thus, the guardian and the
trustee must cooperate to use the assets as efficiently as possible.
Very
often the guardian and the trustee are the same person. While the parents are
alive, they will be the guardians. Parents are the natural guardians of the
minor child, but must make an application to the surrogate court to be
appointed guardian when the child turns 18. The parents, who are usually the
creators of the trust, may also appoint themselves as trustees while they are alive.
The problem of who the guardian or trustee will be,
after the parents are both gone, or in the event of incapacity of the sole
parent, must be made carefully. In the case of trustee, one wants to choose a
person who has good common sense and can
properly handle money. The trustee does not have to be an expert in money
management. The trust document should give the trustee the option of
hiring a professional money manager, an accountant or a financial planner for investment advice, and a tax preparer familiar
with special needs trusts.
Your
question addresses the concern that the relatives who will be successor
trustees live a distance away. While it is preferable to have a trustee close
by, in this day and age, with email, overnight mail, wire transfers, faxes and
computers, people do not have to be in
close proximity to keep in touch and work together.
While
you cannot name a person who is not an adult to act as trustee, you can specify
that your other children may be given an option of replacing an out-of-town
relative as trustee when they reach adulthood. I would make the suggestion
that, if at all possible, you specify an appropriate age such as 25 or 30, when
presumably your other children will be more confident and savvy with the task of handling finances.
Another
option is choosing a corporate trustee, such as a bank. While much more
impersonal, corporate trustees have the advantage of being professional,
independent and impartial. They also will provide continuity for the lifetime
of the disabled beneficiary. On the other
hand, they might not accept a trust which is less than several hundred thousand
dollars. In addition, they will charge an annual fee, which is usually a
percentage of trust assets. A corporate trustee may be selected as a co-trustee
along with an "out-of-town" relative to increase your level of
confidence, in the interim period, while your other children are still too
young to serve.
In fact, appointing individual co-trustees is a very
good idea to protect the trust from possible mismanagement. It is advisable to choose individuals
from different nuclear families, such as a maternal aunt and a paternal uncle,
for example, since a married couple (i.e., a maternal
aunt and her husband) can unduly influence each other, and also the possibility
of divorce could complicate matters.
Some
not-for-profit organizations have established pooled trusts, which is another
option. A pooled trust is an arrangement where many small trusts are managed as one by a professional trustee. The costs
is considerably less for a pooled trust, although the not-for-profit
organization may require that a bequest be made in the parent's will to the
not-for-profit agency, or that any money which remains in the pooled trust at
your child’s passing, will be absorbed by the trust.
When preparing the trust document, it is a good idea to
name several successor trustees, just in case one of the trustees is unable or
unwilling to serve. In addition, you can specify that the current trustee may
choose a successor, if there are no other specified trustees available.
Do
you have a question about any aspect of financial planning for your child or
other family member with special needs? Please direct your questions to:
Karen F. Greenberg CFP®
4673 Brady Blvd
Delray Beach, FL 33445
Tel:
(561) 638-6945
Fax:(561)865-3676
E
mail kfgreenberg@cs.com
All
questions will receive a personal reply. Karen is the mother of a 22-year old
adult son with autism. She also serves as director of Prosperity Life Planning,
a not-for-profit organization, created to serve
the planning needs of families with a disabled loved one. www.prosperitylifeplanning.org
Choosing a Guardian is Critical
By Ryan F. Platt, MBA,
Founder of A Special Needs Plan
For
most parents, guardianship is the largest obstacle to beginning A Special Needs
Plan™.
·
Who is the best person
to care for your loved one if you get sick or die?
·
Is the person or
family you are considering experienced in caring for an individual with special
needs?
·
Does the person fully
understand the scope of this life-long commitment?
We
certainly understand that this decision is very difficult for most families,
due to the complexities of life on the spectrum. We have found that families who can work
through and utilize a very clear ranking system of potential future caregivers
for their child are able to identify and then decide who will be the most
effective future caregiver for their loved one.
Guardianship
should be considered at three different times during your child’s life.
Scenario #1: Both parents die before the child reaches the age of 18.
Your
special needs child needs a loving person or family to care for him or her.
This means someone who will continue all therapies, schooling, medical
treatments and appointments … everything
you do for your child today.
If
you have other children, that guardian must be willing and able to care for
them as well.
Scenario #2: Your child reaches the age of 18, at which
time he or she is considered a legal and competent adult.
Your
child is now responsible for all of his or her own decisions, including
financial and medical decisions. If your
loved one isn’t able to understand the consequences of those decisions or needs
help in making them, you’ll want to consider becoming your child’s legal
guardian.
As
a legal guardian, you can be present at all your child’s medical appointments
and doctors can legally discuss your child’s care with you. You are able to
protect your loved one’s money, income and assets, so that he or she won’t be
taken advantage of by people who don’t have their best interests at heart.
Guardianship
does not have to be forever. It can be
reversed at any time if you determine your child is able to comprehend and
handle his or her own affairs. However,
please know the reversal process can be difficult and arduous.
The
process of obtaining guardianship through your local court system does take
time.
I
recommend that you start when your child is 17½ years of age.
Power of Attorney
If
your child is more capable, you may not feel that guardianship is necessary
when your loved one reaches the age of 18.
But you may still want to be involved in complex decisions regarding
your child’s health and money. In this
case, you should consider these Power of
Attorney options:
Durable
Power of Attorney for the money
Health
Care Power of Attorney for the medical
Scenario #3: As you age, you can no longer care for your
adult child because you become sick or disabled, or die.
Your
adult child needs a guardian when your own health deteriorates and you are no
longer able to care for him or her. And
who will care for your adult child when you pass away?
Begin
preparing for the important conversations
with
potential guardians.
Conversations
about guardianship may involve extended family members, family friends or your
adult child’s siblings. It’s important to listen to everyone’s concerns. Potential guardians are probably wondering
how guardianship will impact their present lives and relationships. They may be
worried that they won’t be able to afford to care for your loved one and still
provide for themselves and their families.
You
can help ease those concerns by completing The
L.I.F.E.™ Journal. This letter of
intent provides the future caregiver of your loved one (their guardian) insight
into your child’s behaviors, favorite activities, and daily life. It will provide the contact information for
the important professionals in your child’s life, such as physicians,
therapists, job coach, employer, attorney, special needs financial advisor, and
more! Adjusting to life without you will
be difficult for your loved one, but at least you can provide the next
caregiver a guide to daily life, so that your loved one’s life activities can
stay as consistent as possible.
To
learn more about Guardianship, future care for your child, The LIFE Journal™,
overall special needs planning or The Guardian Selection Tool™ please feel free
to visit www.ASpecialNeedsPlan.com or email Ryan directly at rplatt@aspecialneedsplan.com.
The Role of the Creative Arts Therapies
By Dr. Peg Dunn-Snow
Autism
awareness is now almost an everyday event with daily news stories and reports
covering topics on new assessments, treatment interventions, and research on autism that affects 1 child out
of 110, according to the most recent data from the Center for Disease Control
and Prevention.
Greater
awareness has increased action. The increased awareness has prompted
foundations to raise research money to help discover the underlining causes of
the disease, universities to develop degrees specializing in the treatment and
education of children with autism, and state departments of education to add
autism as a new area of teacher certification.
Federal, state and local funds are now earmarked to support public
schools in the ability to offer special classes for these children.
The
film Temple Grandin, a made for
television movie, recently aired on HBO.
The movie was based on Grandin’s book, Thinking in Pictures: My Life with Autism, available now in
bookstores. Dr. Grandin was also
interviewed in the February 2010 issue of the Oprah Magazine where she is
quoted as saying, “…it is so crucial to expose autistic kids to lots of
interesting things, even if they’re afraid, I was so scared to go to my aunt’s
ranch when I was 15, but it was the best thing that ever happened to me.”
In
this second edition of her book, Ms Grandin also reports how important it is
for parents and professionals to give attention to children’s strengths and
identify their preferred learning style and
interests, which has been a dictum in graduate special education training programs since the
early 1970s and a hallmark advantage embedded in the creative
arts therapies.
Among
the professionals who help children and their families therapeutically, are the
art, dance, music, drama and poetry therapists, but because of the increase in
children diagnosed with autism there has also been an increase in using the
creative arts therapies in treatment of
this disorder. As the president of the
American Art Therapy Association, I when to Washington DC in 2008 and spoke to
staff members in the House of Representatives and the Senate with the volunteer
presidents of the other national
creative arts therapies associations. We reported how the therapeutic arts
address three major treatment goals for children with autism: language
development and communication, increased sensory awareness, including a
sense-of-self, and increased socialization.
Art
by definition is another language, a universal language, globally accepted and
understood by everyone. Both sensory awareness and a sense-of-self are inherent
in the making of art as a child handles the art materials and creates an art
object separate from the artist; while socialization with others in the safety
of a therapeutic environment is the outcome of any successful art therapy
session. As children participate in any art form, it brings a sense of normalcy
to their lives as goals are achieved within a familiar childhood activity,
especially if the activity in the sessions closely follows their current
interests.
Example of Art in
Action:
Session 1: Dani is interested in all aspects of the
popular TV character Blue’s Clues. Reading
of the story Blue’s Big Birthday
Session 2: Dani learns
to make his own Blue’s cake, complete with blue frosting.
Session 3: After finishing the story, Blue’s Sniffly Day, Dani said, “Make
soup for Blue please”, initiating the suggestion that we now make Blue’s
special, home-made chicken soup. After
Dani’s mother joined this art therapy session, Dani repeated “Make soup for
Blue please.” When Dani’s mother
volunteered to go shopping for the soup ingredients Dani wrote out a grocery
list from memory.
Session 4: Dani helped prepare and cook the soup.
Session 5: Using picture-writing paper, Dani
illustrated his story about cooking and eating two bowls of Blue’s soup.
Like
everyone, children with autism who can talk, will discuss the things that are of interested to them, which is why it
is essential that all who work with these children follow their interests while
encouraging their communication skills.
For
more information about the creative arts therapies:
The
American Art Therapy Association
www.americanarttherapyassociation.org
The American Dance Therapy
Association
The American Music Therapy Association
American Poetry Therapy Association
The National Association of Drama Therapy
National Coalition of Creative Arts Therapies
The
Best Therapy: Clown helps children and seniors interact through poetry, music
and humor.
Reprinted with permission from the Sun
Sentinel
DAVIE -When it comes to entertaining, Lisabeth
Reynolds is just clowning around. But her act is more than a painted-on face
and a rose-colored nose; her jovial therapy reaches out to non-communicative
children and the elderly.
Reynolds is known as Lizzie Love, the Caring
Clown. As a certified poetry therapist, she uses a range of rhythmic techniques
to stimulate the thoughts of children and rejuvenate the mind-set of seniors.
“Working with challenged children, such as the
autistic, involves creative movement and a lot of expression,” she said.
Sparking imagination, Reynolds reaches to the
character of each child by allowing them to create their own version of a song
ending such as “Oh yeah!” in What a Wonderful World by Louie Armstrong,
and then give their own distinctive bow.
“I believe strongly in the body-mind
connection. Make a connection,” she said. “When allowed the opportunity to
express –it makes all the difference in the world.”
Lizzie Love’s hot-pink floppy shoes have found
themselves dancing in a chorus line with the young or one-on-one with the
elderly. Her talents touch on singing, play-acting, face painting, blowing up
balloons, and creating human sculptures such as flowers.
“I can make these people laugh and make them
happy,” Reynolds said.
Working in more than 20 retirement residences,
primarily with assisted living and Alzheimer’s patients in Broward and Palm
Beach counties, Lizzie Love’s therapy extends to the elderly.
“Everyone has a blank stare –I want to get them to connect.”
Reynolds uses pantomime, an expressive
communication by facial and body movements, for Alzheimer’s patients.
“It is incredible,” she said. “They come
alive-almost as though they are allowed to bring out themselves – express
themselves and ham it up.”
Reynolds recalled one Alzheimer patient. “He
had never spoken. We did pantomime and we were saying ‘I love you.’ He spoke
and everyone was amazed.”
At God’s V.I.P. Senior Haven, a retirement
home in Davie, Lizzie Love recently donned her rainbow-colored hair and
heart-patched shirt to inspire cheer on a rainy day.
“There’s no sun outside –it must all be in
here. Let me see your sun shine in your eyes,” Reynolds told them.
Reynolds looked into the faces of all the
patients and attentively addressed each one.
“Bill, sing with me.”
Bill Lanphear, 86, sang Those Were The
Days. He smiled at Lizzie Love and said, “That was wonderful.”
It has not always been smiling clown days for
Reynolds. She ran her own public relations and copywriting firm, writing for
the city of Miami. But when her father died in 1995, Reynolds became depressed.
It was not until a visit to Orlando to see a convention of clowns that she
found a sense of encouragement.
“There happened to be a clown dressed like a
doctor,” she said.
It cheered her up because her father was a
doctor. Inspired, she said, “That’s for me.”
It was then that Lizzie Love was brought to
life. She pursued clown certification through the University of Wisconsin and
joined the World Clown Association.
From behind a painted face, Reynolds sees the
happiness her presence brings.
I’d really like to see a network of
therapeutic clowns around the country in hospitals, in rehab, and nursing
homes.”’
Reynolds
can be reached at lizzietheclown@gmail.com or 954-816-1250.
Sun
Sentinel Community Life - Friday, February 2, 2001
Jacksonville Family Healing Autism
Through Better Documentation And Collaboration
By Tim Clark
Tim
and Nicole Clark began their journey in the autism world when their oldest son
Asher was diagnosed with autism at age 2. By quickly intervening with diet, medications,
and traditional therapies, the Clark family was able to see immediate
improvements in Asher’s symptoms. Shortly after beginning the interventions,
Asher’s parents created an online record-keeping application that tracked his
daily activities and overall treatment goals. The Clark family has recently
opened up the web application at www.AshersJournal.com to be utilized by other
families of autistic children.
Asher’s
initial symptoms were much like other autistic children: no language, lack of eye
contact, severe tantrums, self injury, spinning and toe walking to name a few.
However it wasn’t until a doctor made an official diagnosis of autism that
Asher’s parents came to that reality. The doctor recommended that Asher start a
gluten-free, casein-free (GFCF) diet and to introduce a few vitamins and
supplements into his diet.
“After
the initial grief, we resolved to do whatever it would take to get Asher back
from autism”, recalls Mr. Clark. “One Saturday night my wife came into the
kitchen with our boys’ toy wagon. She filled it with all of the non-GFCF items
from our pantry and refrigerator. We loaded the wagon into our van and took it
to church the next day. We were able to give all that food to a single mom of
two boys who had been in need.”
“After
a week on the GFCF diet, we started getting eye contact from Asher, which we
had not experienced since he was a baby. We were convinced that this diet would
play a big role in Asher’s healing. We began logging all of the foods that
Asher ate using the online journal. In additional to having a good record of
his diet, it also provided good accountability for us as parents to remain
consistent in his GFCF diet.”
In
addition to medical interventions, Asher also participated in a variety of
traditional therapies, including speech therapy, behavioral therapy,
occupational therapy, infant/toddler developmental services (ITDS) and an
autism Pre-K at his elementary school. At one point, Asher had 17 people
working with him on his road to recovery.
“We
knew that it was unrealistic to have all 17 caregivers sit down at the same
table and discuss Asher’s treatment plan,” admitted Mrs. Clark. “Instead, we
designed the website so that each caregiver could sign in and access Asher’s
journal. They could add journal entries and post comments to his journal where
they had questions or suggestions. Rather than leading Asher in 17 different
directions, the caregivers were able to collaborate with each other, resulting
in a single, consistent direction of treatment for him. We believe that their
collaboration has been a major contributor to his remarkable progress.”
The
Mr.
Clark added “We added a feature on Asher’s journal to allow us to attach files,
photos and videos to journal entries. Last winter when Nicole and I were on
vacation, Asher stayed home with his grandparents to continue his therapy
sessions. One afternoon, we received a phone call after Asher’s ABA session because
he had just broken out in a rash around his belly button. The ABA therapist had videotaped the session with her web cam and
posted the video to Asher’s journal. We watched the video over the Internet
from our vacation rental and noticed that Asher began scratching his stomach
after interacting with a teddy bear. The therapist discarded that teddy bear
and Asher has not had any reactions since then. Even though we were eight hours
away, having his daily activities tracked in real-time allowed us to make
informed decisions regarding his treatments.”
Asher’s
Journal is now available to the public at www.AshersJournal.com. Asher’s
Journal is a web-based record keeping application that allows parents,
teachers, therapists, doctors and other caregivers the opportunity to connect
and collaborate for the common goal of the patient’s health. For more
information about Asher’s Journal, contact Tim Clark at (904) 713-2020 or
tim@ashersjournal.com.
Preventing Autism at Birth
By Dr. Phil Bate
(Part 2 of 2 –
Explanation of Vitamin C Treatment)
Allergies & Sensitivities
Every child with ADD to Autism has more allergies
than the average kids, and they develop more than the average amount of food
and chemical sensitivities due to “Leaky Gut Syndrome”.
Here’s the downward spiral progression. It starts with huge stress. Stress is additive, so start with mercury
(leading cause of autism today), add in a genetic tendency towards allergies,
and “normal” living stress. This
additive amount requires extra vitamins and amino acids just to handle the
effects.
However, the autistic infant or child is a very
picky and difficult eater and in our culture today, malnutrition is a given for
most children. Too often, the only food
wanted by an autistic child is not what they need for. Fast food is not good nutrition!
In order to get more needed nutrition, the brain
tells the gut to open up a bit and let more amino acids thru to the
bloodstream. This allows longer strings
of amino acids (peptides) to enter the blood.
Some of these peptide strings are so long that the
brain thinks that they might be dangerous bacteria, so it develops
“sensitivity” to whatever caused that long string to get in. This is called “Leaky Gut Syndrome”. Since some of the first foods fed to infants
are milk and bread, it’s easy to see why the GFCF (Gluten Free Casein Free)
diet helps so many. The Leaky Gut
Syndrome was responsible!
Also see that these new allergies add more stress
to the mix, and the spiral continues downward?
Allergy testing and cure is very expensive and
difficult to get correct at best. In
2000, I first proposed the theory “Raising the SMR brainwave somehow changes
the brain affect from allergens”. This
theory is the only viable theory today as to how EEG Biofeedback (NFB) and Neuroliminal Training (NT) work,
and there are many stories that confirm this theory
My favorite story concerns twin boys about 9 yrs
old. The mother was concerned about
using NT as the boys slept in the same room.
I assured her that only good was possible, and about 2 months later she
reported that the one was cured of ADHD and the other no longer had ragweed hay
fever!
Personally, my wife and I have been using one or
another NT CD. as I have developed and improved them, for 5 years. I no longer suffer from Rheumatoid Arthritis
(Peanuts), nor neuralgia (Soy), nor Hay Fever (Ragweed) and overweight
(wheat). My wife had a headache within a
minute or less of eating any form of corn.
She now eats corn on the cob and popcorn without a problem. At 64, she lost enough weight to again wear
bikinis, (and she can and does).
Most people continue to use the NT CD’s long after
the particular problem has been solved, and I have to believe that the longer
it’s used, the more allergies are solved.
That’s certainly been the case for us.
For this part of the therapy, of course I recommend
the Autism CD package. EEG biofeedback,
or Neurofeedback (as it’s often called now) will also work, but it’s so
expensive as to be prohibitive for autism with over 200 visits to a clinic
required. Compare that to $147 total
cost for NT.
Digestive (gut) problems
First realize that your internal body and your
digestive system (gut) are completely separate, and must be so to work as
designed. The gut has bacteria and
toxins that are poisonous to the internal body.
Compare the two systems to a doughnut.
The gut is the hole, and not really a part of the body, but a doughnut
isn’t really a doughnut without a hole.
The correct gut bacteria are absolutely essential
to good digestion. If you take an
antibiotic, some of it goes into the gut, and kills some essential bacteria,
while not affecting fungus or yeast. In
a really healthy person, maybe you can re-grow that necessary bacteria colony,
but probably not. Maybe, that particular
area is taken over by fungus or yeast cells.
The gut can’t work at normal efficiency, and not enough necessary
nutrition is getting thru. Does the term
“Leaky Gut Syndrome” sound familiar?
Antibiotics can be good things, but they are not
all good.
Every time anyone takes any internal antibacterial pill or capsule, they
should start an Acidophilous regime after they stop the antibiotic.
Here’s what I recommend: Start with 5 capsules of Acidophilous (found
in your health food store in the refrigerator).
Wait for two days, and if gas and cramps are not too bad or gone, go up
to 10 capsules. Try to take with some
milk product (got to feed the troops going to war). If no serious gas or cramping occurs, go up
to 20 capsules every other day for 2- 3 times, depending on the color and smell
as described below. This is what I
recommend for an adult, modify for a child.
Here’s the fun part. You have to monitor the color of the stool. It’ll start out pretty dark and odorous. As you progress, it will get lighter and have
less odor (less yeast and more good bacteria).
By the 5th or 6th dose, it should be yellowish
brown, or orange brown, and be much less odorous.
Repeat whenever any antibiotic is taken that can
get into the gut. (Shots and external
don’t count.)
Inadequate Nutrition
This along with the mercury problem is the hardest
to do correctly. There are many opinions
on this, and there are beginning to be some solutions. We know that the B and C vitamins and some
amino acids are needed most.
I have a chemist friend who has concocted a
“rub-on” sort of lotion that can provide various vitamins and amino acids, but
it’s not cheap, and is still out of the reach of most autistic budgets. He has developed such a regimen for getting
necessary nutrition into gastric bypass patients, and many such surgeons use
his suppositories and lotions. I’ll have
more information on my website if I can get him to sit down and start some web
pages of his own.
If you can get pills into an autistic child, go
with at least a 50 mg B complex daily.
If not, get capsules, open them up, and mix the powder into juice. You can do the same with vitamin C, and even
dissolve Acidophilous into yoghurt or bottled milk.
Do not use the cheap “protein” food. That’s just powdered milk and egg. Get the real mix of amino acids that has the
“predigested” form. It’s more expensive,
but it provides real nutrition, no matter what the condition of the gut. In my former practice, I delighted in
reversing senility (a few of which had been diagnosed as Alzheimer’s) with such
a diet.
The above is the first step toward sufficient
nutrition to stop “Leaky Gut Syndrome”, which results in even more allergy stress,
requiring even more good nutrition.
If you do all the above steps together, I guarantee
that you will see amazing progress. I
guarantee “noticeable improvement” just from my NT Autism CD package within 8
weeks, or your money back. This
integrated therapy will make for even more progress, and make it possible for
some behavior therapy towards normalcy to really work.
Phil Bate PhD is a retired Orthomolecular Psychologist
And a pioneer in many new Alternate Health therapies.
Including Neuroliminal Training – an affordable alternate
to EEG Biofeedback/Neurofeedback – Lowers Allergy Stress
Free Health Information at:
http://www.DrBate.com.
Back To School Lunches On The GF/CF
Diet
By Michele Weppner
It’s
back to school already. Yeah! The summer really flew by. I hope everyone had a
great summer filled with lots of fun, sun, family fun and great food. Now its
time for back to school lunches.
What’s
for lunch? That’s a question I hear from my “typical kid” all week long.
However, with Nate, my autistic son, he can’t ask that question, so it’s my job
to make his lunches fun and tasty. I think I’ve achieved these goals with fun
ideas and I hope they work for you as well.
Like
most autistic children, Nate is very sensory, involving, touching, sight, sound
and smell. He loves to touch and smell his food, and then he will begin to eat.
Of course the color and texture of the food is very important. Food that looks
good will help ensure a successful mealtime.
Make
any mealtime fun, so consider foods like cherries or grape tomatoes, (minus the
stems) which are rich in vitamins A, B, and C. as well as carrots, rich in
vitamin A. The sound and feel of
cherries and tomatoes exploding in the mouth and the carrot “popping” is a
wonderful sensory experience. Other fun foods to pack are bananas, grapes,
blueberries, strawberries, apples, oranges and kiwi. Make sure you remove any
stems and of course delete foods that may cause an allergic reaction.
Products
from “Enjoy Life” are great fun. They are soy, egg, and nut free. They also
package GF/CF granola bars and cookies. For sandwiches, I have found a great brand
source of GF/CF breads, called KinniKinnick. They also package pastries, cookies,
and muffins and are available at Greenwise or Whole Foods. Food For Life is another
outstanding product and can be found at both stores.
My
preference for making sandwiches is Boarshead Deli Meats or Applegate products.
Both are GF/CF and can be found in the deli section at Greenwise or Whole
Foods.
Of
course mustard and mayonnaise is a “no no” so let’s experiment with other spreads
such as guacamole made by Wholly All Natural Foods or hummus made by Sabra or
Tribe. Again, both of these products can be found at Greenwise or Whole Foods.
I
have found using Guacamole or hummus is a great way to hide the taste of
supplements or medicines. Just remember, when making your kids lunches make it
fun and easy. You may think your son or daughter won’t eat these things but if
you don’t introduce new foods you will never know if they will like them.
Give
it a try – good luck and have a great school year.
Michele Weppner is the
mother and care giver of an autistic child. She is also the President of Funds
for H.O.P.E, Inc. A not for profit 501c foundation dedicated, to raising funds
in order to assist low income families with autistic children to receive
Alternative therapies. www.fundforhope.com – Email micheleweppner@belllsouth.net
Vital
Stim Therapy for Swallowing Disorders
Therapies 4 Kids is
now offering a therapy program that is improving the quality of life for
millions of Americans suffering from swallowing disorders, also known as
Dysphagia. According to data provided by the agency for health care policy and
research, Dysphagia impacts 15 million Americans and there are 1 million cases
reported each year.
Cleared by the Food
and Drug Administration in December 2003, Vital Stim Therapy (which should not
be confused, and has nothing to do, with “stem cells”) is the only therapy
approved by the FDA for Dysphagia, and it has been proven effective in patients
young and old.
Electrodes are placed
on the patient’s throat, delivering currents that stimulate the muscles
responsible for swallowing. Diane
Disibio, Speech Pathologist, has been “Vital Stim Certified” since 2006 and
states that “the treatment program is a wonderful tool and a tremendous help to
patients, when followed up with functional therapy.” Typical sessions last one hour and the
patient is also given exercises designed to further strengthening.
Jeffrey Sayler is 11
years old and has been coming to Therapies 4 Kids for the past 4 years .
Jeffrey was delivered via emergency C-Section as a result of a prolapsed
cord. He was without oxygen for 6
minutes which resulted in seizures shortly after resuscitation. He had no gag
reflex and could not cough or swallow. A
GJ Tube was placed when he was 3 months old. Since then, Jeffrey has developed
a gag reflex and can handle his secretions with fair to good ability, although
he still requires suctioning. He was diagnosed with Epilepsy in 2003 and has
taken Keppra since 2004 to control his seizures. Two swallow studies were conducted in 2000
and 2001 both of which he failed.
His mother Barbara
began to explore Vital Stim in Phoenix, Arizona, during the past year or
two. The program made a difference in
Jeffrey’s ability to control drooling and is beginning to enable oral feeding.
Since we now offer the program, she can continue the treatment during the few
months she’s
at Therapies 4
Kids. Jeffrey also receives other oral
stimulatory activities in conjunction with Vital Stim, such as biting and
chewing exercises that are designed to coordinate his breathing and swallowing.
Conventional therapy
for Dysphagia typically employs both compensatory strategy techniques and
specific techniques aimed at improving the coordination and strength of the
swallowing muscles. These efforts have been fairly successful.
Medical practitioners
have used electrical stimulation for a very long time. When an electrical
current flows through the body, it will encounter tissues which react in
different ways, depending upon the type of tissue.
In the case of Vital
Stim Therapy, which is an NMES (Neuromuscular Electrical Stimulation) device,
the current will cause a depolarization of the peripheral motor nerve, usually
where the nerve enters the muscle. Vital Stim Therapy has shown good potential for providing
significant and lasting improvement from Dysphagia. This treatment is safe,
effective and cost efficient and is recommended for both children and adults.
For more information on Vital Stem Therapy, please call Therapies 4 Kids at (877) T4K-UCAN, email info@therapies4kids.com or visit www.therapies4kids.com.
Surfers
for Autism
By Dave Rossman
Daniel
Merens, 25, had never approached his mother Jaclyn before to inquire about participating
in any activity. That is, until he
surfed. Daniel is now one of the thousands of young Floridian surfers on the
autism spectrum to benefit from the work of a budding nonprofit, Surfers For
Autism.
“Surfing
is the one thing he can do that nobody else in our family can do, and that
gives him such a sense of pride and independence. Since he began surfing, he
has blossomed in ways that I never could have imagined, and it is the only
thing he asks to do on a consistent basis,” said South Florida Regional
Director of Autism Speaks Jaclyn Merens. Children on the spectrum are guided into waves by expert
instructors as throngs of proud parents and stunned beachgoers play
cheerleaders for the day, all the while getting a bit misty-eyed.
Families
are not the only attendees who are forever changed, and our volunteers and
sponsors also walk away from our beaches with a sense of community, optimism
and unity that is difficult to replicate. After spending the day with us on the
beach, whether you are a surfer, sponsor, volunteer, beachgoer or family
member, you are a Surfer For Autism for life.
“We
began with a handful of socially conscious surfers and initially took 40
children on the spectrum surfing, but at our most recent event, we took 200
children surfing, had 250 volunteers in the water and over 1,000 people on the
beach with us,” said SFA President Don Ryan. While the organization is growing
by leaps and bounds, the mantra remains unchanged: eliminating stigma through
public awareness and education and uniting communities through volunteerism.
SFA
was the top fundraiser for Broward County’s 2009 Autism Speaks Walk, and South
Florida Parenting Magazine recently recognized SFA with the 2009 Best
Therapeutic Extreme Sport Award. The National Kidney Foundation witnessed the
group’s work first hand and also came on board, along with The Surfrider
Foundation. Deerfield Beach resident Robin Serafine and her 10-year-old son
Charlie have been at every SFA event, and she said these events have provided
her son with an opportunity seldom available.
“Having
Charlie go to the beach to surf like any typical child is something I cannot
describe. He is just a regular boy hitting the beach, and there is none of the
social stigma that children with autism often encounter,” said Serafine. Ryan
agreed and said the events evidence inclusion at the highest level. “One of the
most amazing things is that once they are in the water, there really is no
difference. I had parents tell me afterward that their child had never
communicated like that or been so receptive to touch, and there are very few
dry eyes,” said Ryan.
Sadly,
the group’s mission takes on added importance in light of new developments.
Prior research indicated that 1 in 150 children have Autism Spectrum Disorder,
but a recent study published in the journal Pediatrics suggests that nearly 1
in 110 children have ASD. Debates over causation and cures continue, but after
being on the beach for a SFA event, one thing becomes abundantly clear: these
children respond to the ocean!
SFA
takes children of all ages and abilities surfing, and parents are continually
amazed by what their child can accomplish when given the opportunity. “Things
are said often and words get thrown around quite a bit, but it is absolutely
true that our events change lives and communities. There really are no words to
properly convey the positivity and elation on our beaches, and you really have
to experience it for yourself,” said Ryan.
For
more information about the group, visit www.surfersforautism.org. For a
firsthand look at a prior event, visit YouTube and type “Surfers for Autism” in
the search box.
Candidates for Special Needs
On
Aug. 24th the State of
Florida will hold primaries that will determine what kind of government we have
going forward. Special needs advocates
should look at the entire slate of candidates.
Yomin
Postelnik is running for Florida House of Representatives, District 91, which
encompasses East Broward and South Boca (although the issues that candidates
for state representative run on always affect the entire state, as they can
only vote on state, and not local) matters.
Aside
from his business, jobs and education plans, Yomin has put special needs on the
front burner. Among his plans:
Yomin
explains that special needs advocacy is an area that is particularly important,
due to the fact that those who are most in need of a voice are most preoccupied
with the noble and special task of caring for their loved ones.
Yomin
decided to take the plunge and opened his campaign with the website
www.ABetterFlorida.com. His platform
encompasses the needs of the district and what he feels are common sense
solutions, but special needs advocacy is a central part of his mission.
Whether
you’re a conservative, a liberal or a moderate; whether you are a Republican, a
Democrat, an Independent, a member of any other party or a member of none, if
you care about special needs and have expertise in this area or a desire to
assist those who do get involved in the legislative process.
In
light of the above, two judicial candidates have offered their insights into
special needs.
Judge
Ed Merrigan is known to take great care in finding out the particular obstacles
that individuals appearing before his court may face. He noticed that
this is especially true of special needs individuals, who cannot make eye
contact or respond in a ways that are considered standard in most cases.
While Judge Merrigan goes the extra mile in his courtroom, he also gives this
advice to special needs individuals before they testify in other courtrooms
that may be less familiar with their needs.
"The
parents or guardians of special needs individuals should make the court and
their staff aware of their special needs, not only so that those needs are
understood and accommodated, to the fullest extent possible, but also so that
alternative sentencing and alternative courts can be utilized when available
and appropriate."
Judicial
candidate Jill Tamkin Rafilovich describes a similar process that she would go
through in determining the competence of a special needs child in matters that
involve their giving testimony:
“Under
Florida law a child may be declared competent as a witness if the child has
minimal intelligence and the ability to accurately perceive, remember, and
relate; as well as an ability to understand the importance of telling the
truth. When determining whether a child with a special disability may be
competent to testify, it is imperative for the judge to understand the
distinctive personality traits and characteristics of the child and the
disability. The court should select experts who have the ability to properly
and sensitively relate to the child, and who are schooled in the appropriate
psychological methods of eliciting information from the child. I will be
a compassionate and contemplative judge who is sensitive and recognizes
individuals with special needs. I will follow the law while ensuring that
I carefully listen and properly weigh all of the evidence on a case-by-case
basis.”
Judge
Carlos Rodriguez and judicial candidate Mindy Solomon have also shown a desire
to improve conditions for special needs individuals, as have many others. We urge readers to stay informed and to stay
active, as much good can be accomplished by so doing.
There
is work to be done. Autism insurance
discrimination must end and testing for autism must be covered. Many kids can be mainstreamed through early
detection and treatment. It’s the right
thing to do and besides, it will save the system, the insurance companies and
the government a substantial amount in the long run.
Advocacy
for special needs parents must be made less cumbersome. Red tape must be eliminated and the system
made more effective. Most importantly,
the education system must adhere to basic standards of treatment for special
needs kids and never ostracize children who need extra encouragement or
attention.
If
you don’t have the time or the ability to run yourself, advise a politician or
a campaign that is receptive to the needs of autism and of the special needs
community in your area. The difference
you may offer can be profound.
Autism Health and
Wellness offers a forum to any candidate who has concrete ideas on special
needs advocacy.
Wellness Through Chiropractic Care
By Dr. Scott Herman
Wellness
requires you to be a proactive agent for your body. You need to treat it well
and not wait until you hurt before you decide to take care of it. As we've
said before health is not merely the absence of disease any more than wealth is
an absence of poverty. Let’s remember health is not simply “feeling fine,” for
we know that problems may progress for years without causing any symptoms
whatsoever. As you know by now, heart disease for example, often develops
unnoticed for many years before it strikes: in fact, the first symptom of heart
disease that many people experience is a heart attack or death.
Now
let us be clear that we are not under the illusion that everyone who creates a
wellness lifestyle will be immune from pain, sickness, and disease. There are
many people who do everything right and still get sick and die. Some will argue
that there are many people who do everything wrong and live long, seemingly
healthy lives. However, since we have no way to predict who is who, we have to
do our very best to reduce our risk and promote our health.
Over
the years in private practice, we have seen how neglecting their health has
drained people of thousands of dollars, sometimes to the point of bankruptcy.
We have seen people who have saved up and waited their entire lives to take a
dream trip or to send their kids to college, whose savings and dreams were
siphoned away to pay for health care expenses. We have seen people with
work injuries like carpal tunnel syndrome or neck/back pain who have been
unable to work, unable to drive, and even unable to sleep without pain. We
have seen family members whose entire lives become dominated by the necessity
to care for another family member who is sick or in pain. The effects of
long-term illness or disability on a family can be devastating; in many cases,
it happens to families who are already over-stressed, under-loved, and
emotionally maxed out.
On
the other hand, We have seen people who have been unemployed due to their
pain or health condition choose to adopt new healthy habits: within a short
period of time they are back at work making money, taking care of themselves
and their families again, and are able to put away savings for their
retirement.
We have
heard every excuse you can imagine as to why people believe they can’t afford
the time or money to invest in their health. But the truth is that you must
invest in your health today, or disease may bankrupt you in every way later. If
you don’t have the time and money to improve your health while you feel good,
what makes you think you will have the time and money to improve your health
once you have lost it? As Anthony Robbins once said, "you can make time
for wellness now or you can make time for sickness later." The choice is
yours.
With
regards to your wellness, the three main ideas that we really want to
drive home . . .
Health
is not merely the absence of disease.
The
body has an innate intelligence that runs a series of complex systems that rely
on proper balance and coordination in order to function correctly.
By
living a wellness lifestyle you can enrich your life with vibrant health.
Arrange a special
consultation with Dr. Herman by visiting www.TropicalChiropractic.com or
calling (954) 917-4343.
Summer Camp Safety
By Kay Green, My
Precious Kid
You
are considering camp for your child this summer. Summer camp can build great
childhood memories for your child. How do you make sure your child is safe?
What steps should take to make sure your child's needs are met? Start by ASKING
questions.
1. CALL THE CAMP - Asks lots of questions. Is
it accredited? Do you have references from others who have attended the camp?
What is their camper to cabin leader ratio?
2. MEDICAL – Does your child have any special
needs? Require medication? How does the camp handle these needs for your child?
Call the camp and ask in advance.
3. ID CHILD – Make certain your child wears
some ID each day. ID bracelet or kids dog tags attached to their belt loop.
This protects your child if they get separated during an outing.
4. LABELS – It is important to label all of
your child’s belongings with stickers or iron on labels. Make sure their things
come home with them.
5. PREVIEW – Will the camp allow you to come
is advance to walk thru the camp grounds with your child? For some child an
advance preview will help them feel more comfortable.
6. CONTACT INFO – Get emergency contact info
for the camp. Ask about the camp contact and visitor policy.
7. LETTERS/PACKAGES – Send your child with
pre-addressed stamped postcards to write home. I start sending letters a couple
days before they leave so they get mail early in the week. Mail is a huge part
of camp.
8. PHOTOS – Send your child with a disposable
camera to take pictures. Send family photos with your child if they will make
them feel more comfortable.
9. CLOTHES – I found it helpful to pack each
days clothes/underwear/socks in a 2 gallon zip-lock bag. Then they can change
each day putting the dirty clothes back in that bag. Label each clothing item.
Copyright
2010, Kay Green, My Precious Kid
http://www.MyPreciousKid.com
Monkeyz Kloset
How a Community-Oriented Business was
Founded
It all started about seven years ago when Beth
said, “You know, instead of selling things on ebay, I should just open a
store.” Of course, at the time, she was
working for someone else and since then had always been apprehensive to take
the leap of faith necessary to actually do it.
I’m Deron, Beth’s husband, and this is the story of how the Monkey came
to be a reality.
After that fateful day when the seed had been
planted, it was promptly pushed to the back burner because we were so busy
trying to find out why we couldn’t expand our little family. We always wanted children in the worst way,
but so far it was still just the two of us (plus a menagerie of pets that could
have filled a zoo). Many doctor visits
later, the verdict was delivered; we were not going to have children without
the use of fertility drugs.
Of
course with all of the risks involved with any sort of hormonal drug, we
decided that we would find another way.
We tried the foster program but found that process far too heartbreaking
to continue. Later, we finally decided
on a private adoption of a child from China.
Since 99.5% of the children adopted from China are girls, we planned on
having a baby girl and set about preparing for her. After all of the paperwork was finished and initial
deposits had been paid, we were then simply waiting for the day our name came
up and we would be on our way. You can
imagine my surprise the morning Beth woke me up to tell me she was pregnant.
My
first thought was that I hoped we were going to be having a girl because if
not, our boy would be wearing some really pretty dresses. We had spent the last year amassing a
wardrobe worthy of a princess and would have been quite unprepared for a boy. Luckily, we got our girl and I’ve been
wrapped around her finger from day one.
A
couple of years later, we received a second miracle when our son was born. You’re surely wondering what this has to do
with the genesis of the store but I’m getting there. At this point, Beth was on an extended
maternity leave, during which she was laid-off by her employer. Several months into a long and unsuccessful
job search, she reminded me of the idea she had had all those years before.
Without
anything to lose, this was the perfect time for Beth to take the aforementioned
leap of faith. The first thing she did
was to run a contest on Facebook to come up with a name with the winner
receiving a gift certificate after we opened.
Many of her friends came up with great names…but they were either taken
or the web-sites were unavailable. Then
one evening, I said “we call the kids monkeys all the time, how about Monkeys’
Closet?” She replied
semi-enthusiastically, “it’s ok I guess.”
I said, “hold on, if we spell Monkeys with a Z at the end and Closet
with a K it would stand for Zoey and Kieran” our kids’ names. Needless to say I won the contest…still
haven’t seen that gift certificate though.
Once
we had the name, everything else fell into place like the last few pieces of a
jigsaw puzzle. We knew that we had to
have a safe and fun place for children to come and play while their parents
shopped. We knew that we wanted to have
a bright and cheery décor that would boost the mood of customers as they walked
in the door. Most importantly, we knew
that we wanted the store to feel comfortable for people as if it were an
extension of their homes.
That’s
when Beth really put me to work.
Seventeen trips to Home Depot and about 89 gallons of paint later, we
were ready to move in. The racks and
shelves quickly filled with great stuff consigned to us by the trusting souls
who responded to our ads before the store was ready and handed over their
belongings to my wife. We offer a big
Thank You to those early consignors…we couldn’t have done it without you! Before we knew it, opening day was upon us,
ready or not. To say that the reception
we received when we opened was surprising would be an understatement. It is very humbling for us to have been
accepted into the community as quickly as we have…and for that we thank all of
you!
In
addition to all of the new and gently-loved clothing (infants to juniors plus
maternity) and baby gear, we also have toys, gifts, and lots of
accessories. We have begun to carry
boutique items that are hand-made by local parents including jewelry, glassware,
tutus, and hair clips. Monkeyz Kloset is
also a distributor for new items from Rockin’ Mamas, Babi-Kini, Charlie’s Soap,
Baby Bunches, Baby K’tan, and Pinkaxle.
With all of this available, Monkeyz Kloset has everything you need from
pregnancy to birth to teen years. Plus,
we get new merchandise every Tuesday and Thursday so there’s always something
new to see at the Kloset.
At Monkeyz Kloset we believe that everyone who lives in our community is part of the same family working toward a common goal. We all want our children to have everything they need to keep them happy and healthy. We all want our community to be peaceful and to help others when possible. So, come on in and see us…you’ll be treated like family. Just don’t get mad at us when the kids don’t want to leave!
Compounding
Q & A
By Post Haste Pharmacy
In every field of medicine, there are
some patients who don’t respond to traditional methods of treatment. Sometimes
they need medicine at strengths that are not manufactured by drug companies, or
perhaps they simply need a different method of ingesting a medication.
Pharmacy compounding meets these needs.
It provides a way for physicians and compounding pharmacists to customize an
individualized prescription for the specific need of their patient. Compounding
provides solutions which are not met by commercial products.
Q: What
is compounding and what are its benefits?
Pharmacy compounding is the art and
science of preparing customized medications for patients. Its practice dates
back to the origins of pharmacy; yet, compounding’s presence in the pharmacy
profession has changed over the years. In the 1930s and 1940s, approximately 60
percent of all medications were compounded. With the advent of drug
manufacturing in the 1950s and ‘60s, compounding rapidly declined. The
pharmacist’s role as a preparer of medications quickly changed to that of a
dispenser of manufactured dosage forms.
Within the last two decades, though,
compounding has experienced a resurgence as modern technology and innovative
techniques and research have allowed more pharmacists to customize medications
to meet specific patient needs.
There are several reasons why
pharmacists compound prescription medications. The most important one is what
the medical community calls “patient non-compliance.” Many patients are
allergic to preservatives or dyes, or are sensitive to standard drug strengths.
With a physician’s consent, a compounding pharmacist can change the strength of
a medication, alter its form to make it easier for the patient to ingest, or
add flavor to make it more palatable. The pharmacist also can prepare the
medication using several unique delivery systems, such as a sublingual troche
or lozenge, a lollipop, or a transdermal gel or cream that can be absorbed through
the skin. For those patients who are having a hard time swallowing a capsule, a
compounding pharmacist can make a liquid suspension instead.
Compounding pharmacists have the
opportunity to work with a variety of practice specialties, such as hospice,
pediatrics, pain management, and OB/GYN, which in turn broadens the scope of
their practices and creates other opportunities to provide other pharmacist
care services. Your pharmacy can become a compounding pharmacy – one that is
committed to providing high-quality compounded medications in the dosage form
and strength prescribed by the physician. This triad relationship between the
patient, the physician, and the pharmacist is vital to the process of
compounding so all three can work together to solve unique medical problems.
Q: Can
children or the elderly use compounded medication?
Yes. Children and the elderly are often
the types of patients who benefit most from compounding. Often, parents have a
tough time getting their children to take medicine because of the taste. A
compounding pharmacist can work directly with the physician and the patient to
select a flavoring agent, such as vanilla butternut or tutti frutti, which
provides both an appropriate match for the medication’s properties and the
patient’s taste preferences.
Compounding pharmacists also have
helped patients who are experiencing chronic pain. For example, some arthritic
patients cannot take certain medications due to gastrointestinal side effects.
Working with their physician’s prescription, a compounding pharmacist can
provide them with a topical preparation with the anti-inflammatory or analgesic
their doctor has prescribed for them. Compounded prescriptions often are used
for pain management in hospice care.
Q: What
kinds of prescriptions can be compounded?
Almost any kind. Compounded
prescriptions are ideal for any patient requiring unique dosages and/or
delivery devices, which can take the form of solutions, suppositories, sprays,
oral rinses, lollipops and even as transdermal sticks. Compounding applications
can include: Bio-identical Hormone Replacement Therapy, Veterinary, Hospice,
Pediatric, Ophthalmic, Dental, Otic (for the ear), Dermatology, Medication
Flavoring, Chronic Pain Management, Neuropathies, Sports Medicine, Infertility,
Wound Therapy, Podiatry and Gastroenterology.
Q: Is
compounding legal? Is it safe?
Compounding has been part of healthcare
since the origins of pharmacy, and is widely used today in all areas of the
industry, from hospitals to nuclear medicine. Over the last decade,
compounding’s resurgence has largely benefited from advances in technology,
quality control and research methodology. The Food and Drug Administration has
stated that compounded prescriptions are both ethical and legal as long as they
are prescribed by a licensed practitioner for a specific patient and compounded
by a licensed pharmacy. In addition, compounding is regulated by state boards
of pharmacy.
PCCA’s Quality Control department is
exhaustively devoted to assuring the quality of the chemicals received,
repackaged, and sold to our members. Steps include obtaining a Certificate of
Analysis for all chemicals received, verifying the identity of every bulk
chemical received both before repackaging and completing a second identity test
after repackaging, conducting regular tests of all chemicals in inventory, and
verifying all unique identifier numbers prior to shipping.
As a repackager of unformulated
chemicals for pharmacy compounding, PCCA is registered and inspected by the FDA
and DEA. The company is also licensed in the state of Texas and other states
where licensure is required.
Q: Are
doctors aware of compounding?
Prescription
compounding is a rapidly growing component of many physicians’ practices. But
in today’s world of aggressive marketing by drug manufacturers, some may not
realize the extent of compounding’s resurgence in recent years. Ask your
physician about compounding. Then get in touch with a compounding pharmacy –
one that is committed to providing high-quality compounded medications in the
dosage form and strength prescribed by the physician.
Post Haste Pharmacy (954) 989-6524 www.posthastepharmacy.net
Heaven Mills Mission Statement
Heaven Mills
Gluten-Free Bakery is one of the most specializing manufacturing companies in
the field of gluten-free products. At
Heaven Mills, we strive daily to produce quality products for those who are
struggling with Celiac Disease, or who are trying to maintain a healthy and
gluten-free diet. Being gluten-free no longer means compromising on good taste.
With Heaven Mills, gluten-free products are now rich in taste and made with
fine quality ingredients. We satisfied
our customers.
Our Plant Is:
·
Gluten-
Free
·
Wheat-
Free
·
Nut-Free
· Tree Nut-Free
·
Peanut-Free
·
Lactose-
Free
·
Chemicals-Free
·
Preservatives-Free
· Casein-Free
Additionally,
our bakery specially produces egg-free and sugar-free products on demand.
100% Gluten
Free Premises
Heaven
Mills is an independent plant that produces only 100% gluten-free products. Our
staff takes every necessary precaution to ensure that our facility is free of
wheat and any other products which may contain traces of gluten. We guarantee
the products that we produce are safe for those with even the highest levels of
gluten intolerance.
Our Pure Oats
Have No Gluten Contamination
At
Heaven Mills, we use oats which are planted and harvested with the use of the
highest and strictest standards:
- We purchase seeds
that are entirely gluten-free
- We plant the seeds in fields that have not grown any wheat, barley, rye or
related cereals for three years
- Our farmers ensure gluten-free purity
- We thoroughly clean our dedicated harvesting equipment to ensure that all our
products are 100% gluten-free, avoiding all gluten contamination
- In addition to all of the above, we rigorously test our crops to make sure
that they are 100% gluten-free
Our company is certified gluten-free!
(877) 770-6411
www.HeavenMills.com
Bakery
on Main New Developments – Casein Free
Making the switch from Kosher OU-D to Kosher OU Parve
means much more than removing a letter from a company’s packaging. For gluten
free granola manufacturer Bakery On Main, it means a whole new world of
possibilities.
“By certifying our plant Parve, we can provide products to
the orthodox Jewish community as well as to those who do not eat dairy
products,” said Michael Smulders, Bakery On Main Founder and President.
“Offering Kosher products under the supervision of the premier certification
agency allows consumers who keep Kosher, Vegetarian, and Halal to have
confidence that Bakery On Main’s products are safe for them. In addition,
the OU symbol is seen as a mark of quality for the general consumer.”
The Bakery On Main plant, located in East Hartford, CT,
was certified Kosher in 2007. At that time, the plant was producing biscotti
which contained dairy ingredients. Biscotti production ended in early 2009 and
by early 2010 the plant had transitioned to Kosher OU Parve.
“Converting our
bakery to Parve was a great experience,” said Melissa Carducci-Brooks, Bakery
On Main Operations Manager. “It was very
interesting to watch our Rabbi boil, bake, and blow torch all of our equipment
and utensils. I believe that converting to Parve will open up many new avenues
for us.”
Rabbi
David Bistricer, the company’s Rabbinic Coordinator, agrees,
“Parve certification allows a company to reach a far broader kosher market, not
to mention those that are sensitive to allergens.” The company anticipates its
conversion to Parve will aid in sales and marketing efforts, as well.
“There are a lot of opportunities and no downside,” said
Allan Becker, National Sales Manager for Bakery On Main.” A large percentage of
people across the country look for Kosher products, many times because it
indicates to them that the product is cleaner and purer.”
According to Bakery On Main Marketing Associate, Sara
Lefebvre, the ability to display the OU symbol on the company’s packaging and
marketing materials is particularly valuable from a marketing standpoint. “When
marketing a product designed for consumers with food allergies, it’s not just
about convincing them your product tastes good, it’s about establishing trust
that your product is safe for them to eat,” said Lefebvre.
“For consumers who
can’t have dairy, the OU symbol instantly tells them ‘This is a safe product’.”
The Bakery On Main Story
It all started in the small bakery of a natural
foods market on Main Street in Glastonbury, Connecticut. Founder Michael
Smulders listened to his Celiac customers complain about the taste of many of
the gluten free options available to them. He thought that no one should have
to suffer because of a food allergy or other special dietary need, and made it
his mission to create products that were good for them but taste like they
aren’t.
Late in 2003, after tasting a granola recipe one of
the bakers was working on, Smulders said, “these gluten free people need
granola!” He walked through the store and gathered ingredients and baked the
first batch that day. It took almost 2 years to find gluten free sources of all
the ingredients and find a place where they could make the product without risk
of cross-contamination.
Three years and two bakeries later, their gluten
free granola is made in a 26,000 square foot manufacturing facility with state
of the art quality controls and in-house gluten testing on every
batch. Located just a few miles down the road from the original bakery,
the plant maintains the small bakery quality by continuing to bake in small
batches.
Today, all Bakery On Main
products – gluten free granola, gluten free granola snack bars and Fiber Power®
gluten free granola – are made in a 26,000 square foot manufacturing facility
with state of the art quality controls and in-house gluten testing on every
batch.
The
Bakery On Main plant does not use any artificial colors, GMOs, artificial
flavors, or trans-fats, is certified Kosher Parve by the Orthodox Union,
certified for organic production, certified for gluten free production and
follows Good Manufacturing Practices to ensure consistent quality and safety of
their products.